In this four-part series being brought to you this month, we will explore each of our 2020 – 2022 Strategic Goals in more depth.

Strategic Goal 3

Through the network of partnerships and communities supported by Carers Worldwide to build up a body of evidence on family carers and the interventions that support them in their caring roles in order to inform future policy and practice

There is little evidence available to provide substantial information on the topic of carers and the issues that they face in low-and-middle-income countries. Research is needed about the number of carers, characteristics and needs of different groups of carers, and the effectiveness of support and interventions. In collaboration with our partners, academics, service providers and others working in the (I)NGO sector, we will take a well-placed lead role in identifying relevant research topics and co-ordinating such research.

Key research areas we would like to focus on in the upcoming three years include:

  • Young carers
  • Impact of caring on the health and wellbeing of carers
  • Economic impact of caring on the family
  • Effectiveness and replicability of the Carers Worldwide model
  • Situation of carers in refugee camps
  • Caring as a barrier to social inclusion and employment
  • Informal care and the future of care and caring in Asian countries

We would also like to review existing policies and legislative frameworks in our countries of operation and recommend development of carer-friendly policy actions in areas such as care and employment; health and wellbeing of carers; poverty and social exclusion; and young carers.

Evidence Building in Practice

Self-help Group for Cerebral Palsy (SGCP): At the start of our projects we conduct baseline surveys which provide detailed data on the specific issues faced by carers and their specific needs. An example of one of our baseline surveys can be found in the October 2017 survey which was conducted in Kathmandu Valley, Nepal.

LEADS Nepal: In June 2019 we conducted a qualitative study in partnership with LEADS Nepal which assessed the effectiveness of predominantly women-led Carers Associations in the Baglung and Myagdi regions of Nepal. In the study it was found that approximately 80% of women carers in the regions are now more respected within their homes and have a say in household decisions since participating in income-generating opportunities that have been facilitated through our carers’ projects and carers’ groups. The full results of this study will be published later this year.

We look forward to building upon our existing evidence-base so that we can take informed action to promote the recognition and support of carers. If you have any further questions about this strategic goal please feel free to contact us. Next week we will discuss our fourth and final 2020 – 2022 Strategic Goal which is ‘engaging in policy and advocacy work.’