Carers Worldwide is working in India with three partner organisations – NBJK, SACRED and SAMUHA – and has conducted a pilot project with a fourth – the Elders for Elders Foundation. These programmes have directly impacted the lives of over 2,500 carers as well as their cared-for relatives.
This three year project, funded by the Commonwealth Foundation, is working with 1,560 carers of people with disabilities and mental illness across three Indian states – Karnataka, Andhra Pradesh and Jharkhand. Our partners are SAMUHA, SACRED and NBJK.
Through the project, we have been able to gather extensive data on the issues faced by carers and their families which has been published as a baseline study. We have significantly built the capacity of the partner staff to promote inclusion of carers into mainstream programmes and to establish carer-specific services.
Key achievements in the first year include:
- 103 carers support groups formed with a membership of 1116 carers
- 125 carers receiving short breaks
- 443 carers accessing government and local NGO livelihoods and insurance schemes
- 228 carers receiving regular counselling
- Celebration of Carers Day – the first time in India
“Creating sustainable livelihoods and relieving household poverty for unpaid family carers of people with disability or mental illness in India”
This is a one year project funded by the Scott Bader Company Limited and the Evan Cornish Foundation, conducted in partnership with SACRED and SAMUHA in especially poverty stricken areas of Andhra Pradesh and Karnataka states. 125 carers will receive training and support to initiate new livelihoods which will co-exist with their caring responsibilities. In each project location, a community caring centre will be set up to provide quality care for the cared-for relatives, whilst their carers pursue their livelihood. We expect that all those involved in the project will see their household income levels rise during the course of the project, bringing them and their families above the poverty line for the first time since becoming carers.
“Promoting the recognition and inclusion of carers of the elderly in Virudhnagar district, Tamil Nadu state, India”
In partnership with the Elders for Elders Foundation and Help Age India, we have conducted a consultation and pilot project with 30 carers of elderly relatives and other stakeholders to explore the best ways of supporting them in their caring roles.
There are an estimated 100 million elderly people in India today. Unpaid family carers provide an estimated 90% of the support and care received by these older persons. These unpaid family carers meet the daily needs of their elderly relative and without them, many elders would face isolation, neglect of their physical needs and poverty. However, the burden of caring is immense and has a direct impact on the carer’s physical, mental and emotional health. In addition, as with other carers we work with, the carer’s opportunity to earn an income is often restricted due to their caring responsibilities.
Our future plans include promoting emotional support groups and facilitating access to livelihoods for this marginalised and vulnerable group.
Carers Worldwide works in partnership with two organisations in Nepal – LEADS Nepal and Cerebral Palsy Nepal (SGCP). Our programmes are transforming the lives of 2,200 family carers of children and adults with disabilities or mental health needs, as well as those for whom they care.
“Care for Carers: empowering parents of disabled children in Nepal”
This three year project, funded by the Big Lottery Fund’s Rebuilding Communities programme is based in the Kathmandu Valley.
Our partner is Cerebral Palsy Nepal (SGCP) and together we will be promoting the social, emotional, medical and economic wellbeing of 500 carers, mostly mothers, of children with cerebral palsy and other neurological disorders.
Restricted for much of the time to the house, unable to go to work or socialise, many of the carers involved in the project have been isolated and unaware of their rights. These families were doubly affected by the 2015 earthquakes that devastated the region. Their property and livelihoods were damaged and destroyed and then, because of their invisibility, they were unable to access the support available from government and other NGOs in the weeks and months after.
Through a range of project activities designed to raise awareness, establish carer-friendly services and promote empowerment of the carer community, these carers will experience:
- greater recognition
- increased social inclusion
- improved health and
- increased household financial security
“Improving the physical and mental health, promoting social inclusion and increasing the household income of 1,500 carers of mentally ill individuals in Nepal”
This three year project, funded by UK Aid, is based in the remote districts of Baglung and Myagdi in the Western Region of Nepal.
Our partner is LEADS, Working together, we will bring about improvements in physical and mental health, social inclusion and household income of 1,500 unpaid family carers of people with mental illness or epilepsy. The benefits experienced by the carers will also impact on the relatives for whom they care and the other members of their households as a result of sustainable increases in household income, improved wellbeing of the carer and greater awareness amongst community members and local professionals of these vulnerable individuals.
Prior to this project, there had been no support of any kind targeting carers of people with mental illness and epilepsy in this region. The results of our baseline survey conducted at the start of the project showed that 25% of carers were isolated, 69% experienced physical health problems, 77% were depressed or anxious and 97% of carers and their households lived below the poverty line.
Our activities will include:
- Carers support groups for emotional support and local advocacy
- Training of local professionals and volunteers to enable access to counselling and medical support
- Training in livelihoods that can co-exist with caring responsibilities for over 1,000 carers
- Re-inclusion into school for 225 child carers
- Formation of district level Carers Associations to raise the voice of carers to local government and stakeholders
Earthquake relief and rehabilitation
Following the devastating earthquake on 25th April 2015, which was followed by further quakes, aftershocks and landslides, Carers Worldwide launched an appeal with our strategic partner BasicNeeds to bring immediate relief and longer term rehabilitation to the residents of Baglung and Myagdi districts. Working with our partner LEADS, our specific focus was individuals living with mental illness or epilepsy, their carers and families. In disaster relief situations, these especially vulnerable individuals often face significant challenges in accessing relief. Our joint appeal raised over £28,000 which has enabled:
- Relief supplies (food, water, tents, blankets and emergency medicines) to residents in our project villages
- House rebuilding/repair for 20 families
- Psychosocial support (medicines and counselling) to over 700 individuals with existing or newly emerging mental ill-health and their carers
- Disaster-preparedness training to residents in 20 project villages
In addition, the Scott Bader Company Limited has provided generous support to enable us to support local carers of people with mental illness or epilepsy like Phulu Kharga to rebuild livelihoods which have been damaged or completely destroyed by the effects of the earthquake.
We have a new project currently under development in Bangladesh, which will work with carers of children and adults with a range of disabilities in and around Dhaka.